Psychometric properties of self-reported quality of life measures for people with intellectual disabilities: A systematic review

Chunxiao LI, Wing See Emily TSOI, Antony L. ZHANG, Shihui CHEN, Chee Keng John WANG

Research output: Contribution to journalArticlespeer-review

18 Citations (Scopus)

Abstract

This article aimed to review outcomemeasure instruments of self-reportedQuality of Life (QOL) in people with Intellectual Disability (ID). Instruments were identified from five electronic databases (CINAHL,Medline, PsychINFO, Cochrane Library, and ERIC) and hand-searching with the following inclusion criteria: (i) the paper was to evaluate the measurement properties of QOL; (ii) the measurement measured dimensions/indicators that align with the QOL construct; (iii) the target participants should include an ID population; (iv) the measurement should include self-reported QOL ratings from the ID population; and (v) the study was published in peer-reviewed English language literature. Nine QOL instruments met the inclusion criteria. The evidence of reliability and validity of the included instruments varied. None of the instruments reported for responsiveness. The Choice Questionnaire had the most evidence supporting its measurement properties while the Maryland Ask Me! Project had the least. Future studies are needed to further refine these instruments. Copyright © 2012 Springer Science+Business Media, LLC.
Original languageEnglish
Pages (from-to)253-270
JournalJournal of Developmental and Physical Disabilities
Volume25
Issue number2
Early online dateAug 2012
DOIs
Publication statusPublished - Apr 2013

Citation

Li, C., Tsoi, E. W. S., Zhang, A. L., Chen, S., & Wang, C. K. J. (2013). Psychometric properties of self-reported quality of life measures for people with intellectual disabilities: A systematic review. Journal of Developmental and Physical Disabilities, 25(2), 253-270.

Keywords

  • Developmental disability
  • Well-being
  • Systematic review
  • Validity
  • Reliability

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